DBA MY Problems

Already Out Of Some Supplies

2004-12-19T23:55:00.000-07:00

Well I am already out of my 2X2" gauze which I use after I remove the needle to stop any blood flow, and before I put a bandaid on. I also have to purchase a new battery as my other 3 9 volts are to low to run the driver, I bought generic ones for $1.40 a piece last time, this time I would like to buy Energizers or Duracell as they will last longer but due to a shortage of cash I will have to buy the Generics again. Then hold off on the 2X2s until later. That's it for today..
Doug

This Is another way you can DONATE to my cause..Through PAYPAL. Thank-you in advance

2004-12-19T09:09:00.000-07:00

2004-12-19T01:16:00.000-07:00

Welcome to the DBA Foundation!

2004-12-19T01:13:00.000-07:00

Welcome to Diamond Blackfan Anemia Registry of North America (DBAR)

My Dba is Here Forever!!

2004-12-18T01:57:00.000-07:00

My Dba is here forever, this is one of these syndromes that doesn't go away. The only thing that can be done is a BONE MARROW TRANSPLANT, or a Mini Transplant. Both of these are not without risk to not only the patient, but the donor also. But in the end it becomes a MIRACLE!! Have you registered with the Bone Marrow Registry? If just another 500,000 people had their Bone Marrow Tested and put on file. Just think You Could Help Just 1 person, and we would have another 500,000 possible Matches in the Data Base. So think about it and maybe YOU could make ONE person end their SEARCH, and get a transplant sp perhaps they will Be Disease Free!! Take a minute, an hour, a day and just think about the SMILE you could bring to a CHILDS FACE..
DOUG

2004-12-16T22:14:00.000-07:00

As Promised My Family

MY DBA SUPPLIES AND WHAT IS NOT COVERED

2004-12-16T15:06:00.000-07:00

These Supplies are all except for Not Covered By Any Plan, and therefor have to come out of my Pocket and My Benefits Each Month!! So if you want to DONATE TO MY CAUSE, you can email me and I can give you the particulars. Thank-you in Advance
Doug Dickson

Supplies needed for Desferal infusion

Name Quantity/month Price Covered Y/N
Desferal 3 grams Yes
Hydrocortisone 15mg Yes
20ml Syringes 20 $17.48 No
sterile water 400ml $20.00 No
needles butterfly 20 $40.00 No
pump tubing 4 $80.00 No
tegaderm 20 $15.00 No
alcohol swabs 100 $2.99 No
2x2 swabs 100 $2.99 No
Micropore tape 1 $2.19 No
9 volt batteries 2 $15.98 No TOTAL NOT COVERED $193.64

My Problem with DBA can cause cash Shortages!!

2004-12-15T22:11:00.000-07:00

I am on a treatment, that takes the excess Iron out of my body, because of repetitive transfusions I have an over abundance of Iron in my body, which can deposit in my Major Organs and crystallize. The only way to remove the Iron is do self Chelation Therapy at Home. I use a Syringe Driver and need to insert a needle under the skin in fatty tissue. The Syringe Driver runs for 10 hours per day and I must Chelate 5 days per week. There are certain things that are covered by A.I.S.H. and then there is a long list of things that are Not Covered. They are rather expensive and some months it is hard to make ends meet and Pay for the Extras. The next Blog will contain the list of What is Covered and What is Not. What I need help through Donations is for what is Not Covered. If you can Help it would be Greatly Appreciated by My Self and My Family. I will Also Post A Picture of them..
Doug
PLEASE NOTE THESE DONATIONS WILL HAVE NOTHING TO DO WITH DBA FOUNDATION, UNLESS THEY EXCEED MY REQUIRED NEEDS PER MONTH
THANKYOU DOUG DICKSON

2004-12-15T22:09:00.000-07:00

Hi I'm Doug